A Patient-Powered Research Network

The article applies the social media listening method through a patient networking application, which is used free of charge by millions of patients with similar conditions in different countries. Users of the application approve the term of use, the privacy policy, and the usage of their de-identified data for research purposes when they install the application. In this social media review, symptoms will be related to patients’ characteristics and treatment pathways.

Regarding the Multiple Myeloma patients’ statements during social networking through the application, researchers specifically targeted identifying the parameters associated with specific health-related quality of life outcomes and the meaningful concepts to measure that allows a more personalized approach to treating these patients.

• Although a Patient-powered research network (PPRN) connects patients with similar conditions to each other and eases coping with their situation, it may provide researchers utilizing a rich pool of data to mine and scan for concepts using programmed algorithms. 
• A review of patients’ communications in this study has contributed to the commonly reported symptoms in former literature by adding some outcomes. 
• The ability to understand the sequence of issues during disease and how sub-population of patients face allows for a personalized approach to treatment, improving adherence and quality of care, and increasing patient well-being.